A Legacy of Light: Hedley Lewis and the Heart of CHOC’s Mission

 

Leadership is often redefined by those who dedicate their lives to serving others. For Hedley Lewis, CEO of CHOC Childhood Cancer Foundation South Africa, leadership is not about authority, but about purpose, people, and progress. His career stands as a testament to the belief that true leadership uplifts communities and leaves an enduring legacy of hope.

Purpose-Driven Beginnings

Hedley’s journey into leadership began with a deep conviction that meaningful partnerships have the power to transform lives. His early work with the Vodacom Foundation showed him the impact of collective action, inspiring him to dedicate his career to organisations that drive lasting social change.

When the opportunity to lead CHOC arose, it resonated with him personally. “The resilience of children facing cancer and the challenges their families endure moved me profoundly,” he reflects. “I knew that if I could bring my experience and leadership to CHOC, I could help make a life-changing difference.”

Leadership Grounded in Humanity

At the core of Hedley’s leadership philosophy is the African spirit of Sawubona—“I see you.” For him, leadership is about acknowledging every individual, empowering teams, and creating environments where people feel valued and heard. “A leader who doesn’t listen can only go so far,” he explains. “Real success is built on trust, respect, and learning together.”

His approach is rooted in openness and collaboration. Rather than seeking to have all the answers, he focuses on asking the right questions, listening deeply, and navigating challenges alongside his team.

From Humanitarian Halls to CHOC’s Heartbeat

Hedley’s career spans multiple humanitarian and development organisations, each shaping his outlook on people, partnerships, and purpose. His exposure to diverse governance models and international partnerships gave him unique insights into mobilising resources and building trust across sectors.

These experiences now inform his leadership at CHOC, where he engages confidently with stakeholders ranging from government bodies to the World Health Organisation. What remains constant, he says, is the heart of the work: “building trust, empowering the unheard, and ensuring impact reaches those who need it most.”

CHOC’s Mission: Healing Beyond Medicine

Under Hedley’s leadership, CHOC stands as a lifeline for children and teens battling cancer and blood disorders. The organisation’s mission goes beyond medical treatment—providing emotional, social, and practical support to families during their most difficult journeys.

“Treating a child with cancer takes a village,” Hedley emphasizes. “It’s not just about medicine—it’s about community, compassion, and connection.”

CHOC’s strong partnerships, both local and global, amplify its mission. From grassroots collaboration with schools and hospitals to global alliances with St. Jude Children’s Research Hospital and Childhood Cancer International, CHOC unites efforts to ensure no child faces cancer alone.

Stories That Inspire

For Hedley, the most powerful moments are found in the stories of children whose lives have been transformed. One such story is that of Xichavo, a boy diagnosed with osteosarcoma while caring for his younger siblings after his mother’s death. Initially reluctant to leave them, he was persuaded to stay at CHOC’s Diepkloof House, where he and his siblings found not just shelter, but a family.

Today, Xichavo is a cancer survivor pursuing his dream of becoming a chartered accountant. “His story captures why CHOC exists,” Hedley shares. “It’s about restoring hope when families are at their most vulnerable.”

Grassroots Impact Across South Africa

CHOC’s reach extends deep into communities, with over 90 staff across the country working hand-in-hand with hospitals, schools, and local leaders. By training community health practitioners and educators to recognise the Siluan Early Warning Signs of Childhood Cancer, CHOC improves early detection and survival outcomes—especially in underserved areas.

“To truly support families, we must meet them where they are—geographically, emotionally, and culturally,” Hedley explains.

Building Bridges, Not Silos

Hedley firmly believes partnerships are the cornerstone of CHOC’s work. Collaborations with government departments, hospitals, corporate sponsors, NGOs, and volunteers form the backbone of CHOC’s national and international impact.

“No single organisation can meet all the challenges families face,” he stresses. “But together, we can build stronger systems of support.”

Resilience in the Face of Challenges

Navigating funding shortages, rural outreach, and the emotional toll of cancer care, Hedley has led CHOC with resilience and innovation. Rather than seeing other NGOs as competition, he embraces collaboration to extend impact.

Strategic funding initiatives, including long-term donor engagement and community-driven campaigns like The Cows, have strengthened CHOC’s sustainability. Expanding transport and accommodation services has ensured that children, regardless of geography, receive uninterrupted care.

Digital Innovation with Purpose

In today’s connected world, Hedley sees digital platforms as vital tools for awareness and impact. Through Facebook, Instagram, LinkedIn, and TikTok, CHOC shares early warning signs, patient stories, and updates that educate and inspire across South Africa. “Technology keeps us close to our mission and even closer to the families we serve,” he notes.

A Future Built on Hope and Equity

Looking ahead, Hedley envisions a South Africa where no child suffers in silence and every family has access to timely diagnosis and comprehensive care. His leadership contributes to the global goal of raising childhood cancer survival rates to 60% by 2030.

His legacy is not only one of equity and collaboration but of relentless advocacy for children and families whose voices too often go unheard. “Witnessing the difference we make in lives keeps me going,” he reflects. “It’s a privilege to walk this journey with such dedicated teams, medical heroes, and courageous families.”

Conclusion: A Legacy of Light

For Hedley Lewis, leadership is not measured in titles or accolades, but in the smiles of children, the resilience of families, and the hope carried forward by CHOC’s mission. His story is one of compassion, courage, and collective action—a legacy of light that will continue to shine for generations to come.